Scoliosis affects the majority of individuals with Rett syndrome and requires careful monitoring and management.
Scoliosis Management
Regular scoliosis screening, bracing for progressive curves, and surgical fusion when necessary are key orthopedic interventions. Surgery timing is important—early detection allows for less invasive interventions.
What to Look For
- Pediatric orthopedic surgeon with Rett experience
- Scoliosis monitoring program
- Conservative-first approach
Questions to Ask
- How often should scoliosis be monitored?
- When is bracing recommended?
- At what curve angle is surgery considered?