Neurologists manage the seizures, breathing irregularities, and other neurological aspects of Rett syndrome.
Neurological Management
Seizures occur in approximately 80% of individuals with Rett. Breathing irregularities (hyperventilation, breath-holding, air swallowing) are also common. Neurologists manage these symptoms with medications and monitoring while staying current on emerging Rett-specific treatments and gene therapy research.
What to Look For
- Rett syndrome neurology experience
- Seizure management expertise
- Breathing irregularity knowledge
Questions to Ask
- How do you manage Rett-related seizures?
- What about the breathing irregularities?
- Are there clinical trials available?