Parent-Led Organizations
National and statewide groups built by parents, for parents. They've been where you are.
NYADD — New York Alliance for Developmental Disabilities
Statewide advocacy and family resources across New York.
Coalition for Self Direction (C4SD)
Family-led advocacy ensuring New Yorkers with intellectual and developmental disabilities can direct their own services and live in the community on their own terms.
National Council on Severe Autism (NCSA)
Advocates for individuals and families affected by severe autism — housing, services, lifespan supports.
Parent to Parent USA
Connects parents of children with disabilities to trained support parents who've been there.
Family Voices
National family-led org promoting partnership between families and professionals in healthcare.
MUMS National Parent-to-Parent Network
Free matching service for parents of children with rare disorders or disabilities (via NORD).
The Arc — Family Support
Nearly 600 chapters supporting families of people with intellectual & developmental disabilities.
Autism Society — Parent Support
Local affiliates providing parent support groups, helplines, and education.
Federation for Children with Special Needs
Information, training, and one-on-one assistance for parents.
Caregiver Action Network
Free education, peer support, and resources for family caregivers.
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