Support groups connect individuals and families affected by sickle cell disease for peer support and advocacy.
Support Networks
Sickle Cell Disease Association of America chapters, hospital-based support groups, online SCD communities, and youth programs provide peer connection, education, and advocacy opportunities.
What to Look For
- SCD-specific group
- Age-appropriate options
- Advocacy component
Questions to Ask
- Are there groups in my area?
- Are there programs for children/teens?
- How can I get involved in advocacy?